Sunny skies, a beautiful mountain backdrop, and friends from all around the world converged on Denver in mid-July for the annual Down syndrome convention, hosted by the National Down Syndrome Congress. It’s a family reunion of sorts…The goal: Learn more. Meet new friends. Reunite with old friends. And DANCE!
The Down Syndrome Network Oregon awarded three scholarships to member families to attend the conference. Additionally, three board members attended with families, including DSNO founder Paula Schiedler, and Barb and Karen Gaffney, who gave the keynote speech on Friday night.Read More
DSNO hosted author George Estreich during the May Moms’ Coffee, with over 20 attendees.
At the event, the Corvallis father read excerpts from his re-released book The Shape of the Eye. It’s a personal memoir intertwined with facts about Down syndrome that he created to share his experience with Laura, his 12-year-old daughter born with Down syndrome.
Hearing his stories took me back to the days when I was afraid. The day our Lizzie was born.
On November 18, 2011, Elizabeth Piper popped out by c-section. A little butterball, everyone in the operation room said. She was small in length, but weighed 9 pounds and 8 ounces. I remember vividly her very round belly, her short legs that stayed scrunched up in their fetal position, and the bluish pigment of her skin. I thought something wasn’t quite right. And later, doctors diagnosed Lizzie with Down syndrome.Read More