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Mom’s Coffee – Vancouver

Posted by on Oct 16, 2014 in Activities, Mom's Coffee, Parents | 0 comments

Mom’s Coffee in Vancouver is open to anyone with a loved one who has Down syndrome. All ages of children welcome!!

Enjoy some coffee, water and some snacks. Make new friends, see old friends, laugh, learn or just simply take a break from Dr. Appointments.

Check out the EVENTS CALENDAR for future Mom’s Coffees!

Megan Schiedler Homecoming Princess

Posted by on Oct 16, 2014 in Activities, Parents | 0 comments

Megan Schiedler Crowned Homecoming Princess
Lake Oswego High School!

meagan

Jacob Elected Homecoming Court

Posted by on Oct 16, 2014 in Activities, Press & Media | 0 comments

Jacob Elected to Senior/Junior Homecoming Court at Newberg High School

caitlin jacob pic
We are very excited to tell you that Jacob was elected and announced today during the Pep assembly as the member of the Junior/Senior Homecoming Court. There maybe some responsibilities he may have related to Homecoming.

Here is the spirit week (dress up) schedule:

Tuesday: Dress like a Tourist
Wednesday: Nothing
Thursday: Dress like a Teacher/ Teacher dress like students
Friday: School Spirit day (Blue/Gold)

Best Buddy Walk Ever!

Posted by on Oct 7, 2014 in Activities, Buddy Walk | 0 comments

Thank you for the Best Buddy Walk Ever!

buddywalk-success
If you couldn’t join us last Sunday, then you missed out on a fabulous day!

The weather was perfect, music kept us moving, lunch was yummy and the inspiration and fun was over the top!

Thank You for everyone that attended, donated, sponsored, volunteered or just supported our 2014 Buddy Walk! It was a huge success thanks to all of you.

~~ This Year’s Wonderful Sponsors ~~

We want to thank our 2014 Buddy Walk Sponsors again! We couldn’t do it without you all!

Epic Sponsors ($2,000 or more) ~

The Partners Group

DeStefano Family Foundation

Jeff and Sandy Jones Family

Portland Firefighters

Abigail McNatt’s Family

Community Sponsors ($1,000 or more) ~

Tom, Mary, Peter and Sarah Lewis

Olson Pediatric Clinic

Sather Byerly & Holloway

Wolfers Heating & Air Conditioning

Ramey Family

Kilpatrick Family

Director’s Mortgage

Stephen’s Place

Friend Sponsors ~

West Coast Event Productions

Zupans Markets Lake Grove

Berkshire Hathaway Home Services Northwest Real Estate

Minuteman Press

Lake Oswego Lions

American Solutions for Business

KINK

Conde Law

Gerald and Sarah Bieze

Wizer’s Fine Wines

Michael Paige Photography

Dr. David Cavano, Pediatric Dental Group

Children’s Healing Art Project

Posted by on Oct 7, 2014 in Activities | 0 comments

DSNO Art Club!

photo-chap
All of us had a great time at CHAP – Children’s Healing Art Project this past Saturday creating Bird Masks, Paintings and Feathery Pencils!

CHAP Studio
1920 SE 11th Avenue
Portland, Oregon 97214

Sign up for our newsletter to be informed when our next DSNO Art Club will meet again!

Down Syndrome Network Oregon Loves Joe Donlon – Buddy Walk 2014

Posted by on Sep 29, 2014 in Activities, Buddy Walk | 0 comments

Joe shakes it with the Rio style Samba band Bloco Alegria at this years Buddy Walk.

The Oregon Optimist

Posted by on Sep 25, 2014 in Activities, Down syndrome | 0 comments

2014 Buddy Walk, Down Syndrome Network of Oregon

Written by H. Whisman, Oregon Optimist

oregon-optimist-buddy-walk

Written by H. Whisman, Oregon Optimist

This Sunday, September 28, the Down Syndrome Network of Oregon (DSNO) will host its 2014 Buddy Walk in Millennium Park Plaza to celebrate and support families with loved ones with Down Syndrome.

Lynnette Sander, mother of three, will attend the Buddy Walk with her family for the third year in a row to support her youngest son, Ethan. “We enjoy many aspects of the Buddy Walk. Mostly it is a good time to meet new families and touch base with familiar faces of families in the Down Syndrome community,” she said.

The schedule of events includes pre-walk festivities, the walk itself, lunch, and a dance contest. “The walk is relatively short because everyone walks, including those that have Down Syndrome,” Sander said.

“[The walk] is preceded by a short presentation and music and following the walk are many activities and lunch for the children and families alike. At the walk are many booths with resources for families, including Dr. Pinter, the leading physician from the Down Syndrome Clinic up at OHSU,” she said.

The yearly event is the organization’s only fundraiser. DSNO uses the proceeds to offer programs and services for families supporting loved ones with Down Syndrome. The events provided by DSNO include: Coffee for Moms, Dad’s Dinners, family outings, educational events, and scholarships for the National Down Syndrome Society’s annual conference. The Buddy Walk has generated approximately $54,000 already, and hopes to reach its goal of $70,500 by Sunday.

This fundraiser is designed to promote awareness of the Down Syndrome community. When registering for the walk, members can create Buddy Pages, which are profiles that introduce participants to one another as well as promote sponsorship from family and friends. The walk is designed to promote a sense of community.

“I think the best thing about getting the community involved in these events is the awareness that is raised, not only about Down Syndrome, but about disabilities in general,” Sander said.

“There are so many disabilities out there and each one brings its own preconceived notions and prejudices. Events like these show people that these disabilities don’t define the person, but rather each person with a disability is uniquely gifted to … the best life for them in spite of their disability,” she said.

DSNO is a faith-based, non-profit organization that unites parents and families of children with Down Syndrome to share experiences and support one another.

“I found the DSNO website and sent an email telling our story of Ethan’s birth and that while not surprised he had Down Syndrome, we were a little overwhelmed. Within a day, I had been called by both of the founders of Down Syndrome Network of Oregon to welcome us to the community,” Sander said.

To donate to DSNO or to sponsor a Buddy, follow this link.

Read the article at The Oregon Optimist.

Portland Tribune

Posted by on Sep 19, 2014 in Uncategorized | 0 comments

For Lake Oswego High players and students with special needs, flag football creates a path toward understanding and acceptance

Written by Jillian Daley

Photo Credit: REVIEW PHOTO: VERN UYETAKE - Laker football player Drew Todd, a junior, and Lake Oswego Junior High sixth-grader Willie Johnson get in a little pre-game workout.

Photo Credit: REVIEW PHOTO: VERN UYETAKE – Laker football player Drew Todd, a junior, and Lake Oswego Junior High sixth-grader Willie Johnson get in a little pre-game workout.

When you’re as athletically gifted as Max Oppenheimer, it’s easy to forget that something as simple as catching a football or sprinting across a field isn’t easy for many other kids.

But the Lake Oswego High senior has spent a lot of time with special-needs kids through the Best Buddies Club at school and at the Buddy Walk, a fundraiser for Down Syndrome Network Oregon (DSNO). And there’s one thing he knows for sure.

“They’re just like us,” he says.

That became even more apparent when Oppenheimer and his Laker teammates took time after practice to help kick off DSNO’s new flag football program last week.

Photo Credit: REVIEW PHOTO: VERN UYETAKE - LOHS junior Max Mattern, left, high-fives LOHS freshman Irvin Herrera.

Photo Credit: REVIEW PHOTO: VERN UYETAKE – LOHS junior Max Mattern, left, high-fives LOHS freshman Irvin Herrera.

The program, which brings together DSNO kids and mainstream high school football players, was the brainchild of LOHS seniors Kate Carter and Julianna Ramey.

“To make it happen,” says Ramey, “and to see the joy in the kids’ faces and what it does to our football team is something that caught me.”

DSNO supports children with Down’s syndrome, autism and other special needs. DSNO kids played LOHS once last year, but the program’s now going to appear at high schools throughout the area. Lakeridge and Sherwood are already on the schedule.

The program is intended to teach acceptance to all kids and inspire DSNO members, says Renee Kerr, co-founder of DSNO.

“The more people who are involved, the more we understand each other,” says Kerr, whose son is a DSNO member.

Dozens of junior varsity and varsity LOHS football players crowded around to cheer on participants at last week’s game. Within the crowd of towering teens in football jerseys stood senior Mitch Teed.

Photo Credit: REVIEW PHOTO: VERN UYETAKE - DSNO member David Holmes hits the blocking machine.

Photo Credit: REVIEW PHOTO: VERN UYETAKE – DSNO member David Holmes hits the blocking machine.

Teed, a receiver, says he loved connecting with the DSNO kids.

“It really helps them feel accepted by all of us and makes them feel like a part of the team,” he says. “It lets them know we care.”

DSNO member and LOHS junior Eli Kerr sure could tell. “Go team,” Kerr called out, radiating sunshine with his smile.

Oak Creek fourth-grader Liam Hamilton also was bursting with enthusiasm, rushing toward his mom after the game, saying, “Make way, make way. I made two touchdowns!”

“Dude, you were awesome out there,” his mom, Kristin Hamilton, told the happy boy.

LOHS sophomore Megan Schiedler beamed after the game as LOHS junior football player Tommy Underwood sang her praises.

“Megan is a really good girl; she’s really fun to be with, too,” Underwood says. “She gets to wear my jersey this year.”

Kerr says it’s important that able-bodied kids understand the limitations that other children face. Teed and Oppenheimer seem to have realized just that.

“It really puts things into perspective, how easy we have it,” Teed says. “Helping (DSNO) kids out really helps us.”

Oppenheimer says he’s learned how lucky he and many of his fellow students are. He also loves to inspire children with special needs.

“They really feed off our energy, and they have fun,” he says.

LOHS football coach Steve Coury proudly watched his players interact with the DSNO students and noted how welcoming and how much like a family they had become.

“That’s a credit to them and their families,” he says. “We talk about it a lot. It’s a lot more than a football team.”

Contact Jillian Daley at 503-636-1281 ext. 109.

Read the article at PortlandTribune.com.

Mom’s Night Out!

Posted by on Jun 18, 2014 in Uncategorized | 0 comments

DSNO does Denver

Posted by on Aug 20, 2013 in Down syndrome, National Down Syndrome Conference, Parents | 0 comments

Karen and Megan, of Oregon, at Opening Night of the conference.

Karen and Megan, of Oregon, at Opening Night of the conference.

Sunny skies, a beautiful mountain backdrop, and friends from all around the world converged on Denver in mid-July for the annual Down syndrome convention, hosted by the National Down Syndrome Congress. It’s a family reunion of sorts…The goal: Learn more. Meet new friends. Reunite with old friends. And DANCE!

The Down Syndrome Network Oregon awarded three scholarships to member families to attend the conference. Additionally, three board members attended with families, including DSNO founder Paula Schiedler, and Barb and Karen Gaffney, who gave the keynote speech on Friday night.

Karen raised the roof that night. She had hundreds in the room rise to their feet with a thunderous applause when she asked doctors to focus their research on helping individuals with Down syndrome, and bettering their lives – rather than terminating them. Karen’s words launched the conference into a positive, learning experience that no one will soon forget. The topics introduced ranged from: improving speech clarity, unraveling the IEP process with success, and financial planning for ongoing care of special needs individuals. Specialists including Brian Skotko, Libby Kumin, and Pat Winders shared their expertise in genetics such as prenatal diagnosis, the benefits of site reading, and tools for enhancing gross motor skills.

Scholarship recipient Heidi Yaw’s son, Georgie, makes friends with Lizzie Dale (Jennifer’s daughter) at the Conference

“I always come away with a great list of things that we can easily incorporate into our lives,” said DSNO scholarship recipient Sue Coleman, mother of Cy (4), and Rita (2 with DS), of St. Paul, Oregon. “I learned that our kiddos will learn better in combining audio, visual and motor skills.“Most of all, I love hearing from adults with Down syndrome about how they have graduated college, drive, get married, own homes and are part of the workforce.”

The conference is as much about learning what works as it is about meetings friends who are walking in your shoes. Everyone dons a smile all week long. I remember one of the gross motor sessions where Pat Winders introduced a walker that enabled a young four-year-old to run across the room. All 40 attendees stood from their seats and cheered the little boy’s newfound skill and speed. It was awesome.

Each year, the Conference is held in mid to late July. More than 50 sessions are scheduled during a 2-day period. Every conference offers fee-based childcare, making it reasonable for a family to attend. Concurrently running with the conference are a self-advocate conference for individuals with DS and a sibling conference full of fun activities, including sharing sessions and field trips to amusement parks and elsewhere.

The annual Down Syndrome Conference is coordinated by the National Down Syndrome Congress (NDSC). Next year’s conference will be July 11-13, 2014 in Indianapolis. If you were unable to attend this year’s conference, we have two ways for you to learn more:

  1. NDSC recently posted 55 sessions online. NDSC members can pay $45 for full-access; non-members pay $75. Here is the link: http://convention.ndsccenter.org/registration/
  2. Down Syndrome Network will host a Moms’ Coffee on September 6th, from 10:30am to 12:30am, with local attendees who will share their experience. Watch the DSNO website for more information.

 

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